| Every day I get letters from people who have relatives, often children, with autism. The letters I receive are so tremendous that sometimes I think it is unfair that I am the only one who gets to read them! The other day I received the following letter. I was so moved by it that I asked the sender whether it would be all right to post it on my blog because it is just so inspiring, so wonderful. Fortunately, she agreed and here it is:
Dear Marti-
I just finished reading your newest novel "Daniel Isn't Talking". I had
read a review of it in one of the magazines while sitting in the waiting
room of my son's doctor. I must confess, it's not the kind of book I
usually read, since my whole life is full of daily reminders of my own
son's autism, but I jotted the name down anyway. I must admit, once I
began reading the novel, I couldn't put it down. I kept asking myself,
"Does this author know me?"
The feelings, experiences, despair and ultimately hope that this mother experienced are all too true. I went
through exactly the same emotions, ultimately had my husband leave me,
and sacrificed my personal happiness for that of my son and for my other
two children (who are normal). I can't say that I have recovered...but I
am changed. I have always said that that single day when I was told of
my son's autism humbled me forever. No longer was I the former
homecoming queen, 4.0 student, ready-to-conquer-the-world type of woman.
I was now the woman who had to camouflage the bite marks that her son
left on her while struggling to get away in tha Safeway supermarket, the
woman who once contemplated handing out notes explaining her son's
disability to those disdainful onlookers who thought I was the worst
mother.
I became the "psycho" parent, having to convince everyone that
her son had something wrong with him, even though he had the most
beautiful face on the planet and it was "I" who was indeed crazy. I
began throwing up before church, terrified that my son would crawl under
the pews and begin licking someone's feet (he loved doing this). I look
around my home and see reminders of his pre-MMR days when he had a smile
as normal as any toddler's. A time where he could laugh and count in
two languages, play peek-a-boo, and give me real hugs.
Like your heroine, I went through battles to reclaim my child. He went from being
normal to not talking, looking at me, would want to spin for hours, and
would scream when there were more than 4 people in a room. My daily goal
was to get the kids to sleep so that I could watch my son's
face and pretend that he was normal. I decided that I had to do
something positive...or check myself into a mental hospital. With my
mom's support, I went went back to graduate school and got a Masters in
Special Education and Emotional Disabilities so that I could be my own
son's advocate. I became the LOVAAS expert, and did my own ABA. I was
lucky enough to be in one of the best school systems of the United
States, where he got the attention that he needed. In short, my son is now entering the 9th grade in high
school. He is an honor student and is tackling classes like Algebra next
year. He is not Aspergers, but rather has what you would call
high-functioning autism, much like Daniel in your book. He went from not
knowing that I was his mother at 5 years old, not knowing how to point
or communicate, to writing beautiful creative stories, and engaging in
in-depth discussions about racial issues in our society. to asking the
the guide at the Aquarium if sting rays have echoalia much like bats. He is an intermediate level skier, dives off of cliffs on Greek islands, is an avid horseman, and enjoys long walks with his mom.
I am grateful for my
son. Thank you for writing such a lovely book. The love story you added
gives me some hope in that area as well. I plan on giving it to my
"estranged" husband to read, so he can have some insight on my feelings,
and maybe see that I was never that crazy to begin with. |